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Children's Clinic physiotherapist Reeli Rutens jenneke (left) is a 12-year-old Mary lives Masonry very important person - the girl's muscles and joints are relaxed vacation. Mother, Michelle jenneke bricklayers, do not talk to the liver.
Children's Clinic physiotherapist Reeli Rutens (left) is a 12-year-old Mary lives Masonry very important person - the girl's muscles and joints are relaxed vacation. Mother, Michelle jenneke bricklayers, do not talk to the liver.
Bricklayer Mary is a 12-year-old girl whose photo was published this spring UT Hospital Children's Foundation website along with the story that speaks to the fact that Mary is a need to feed the special food mixture. The mixture is expensive, and it does not compensate for the Health Insurance Fund and the assistance of donors to Mary desperately needed it. Mary, Michelle and Mary Wreath Ahjal Bricklayer living, jenneke loving close to the middle of which the most important are his mother, Heat and Estonian language and literature teacher Maarika Bricklayer, and 76-year-old grandmother jenneke Wreath Bricklayer. Mary suffers from cerebral palsy, which means the Estonian jenneke language, that his limbs, mobility is impaired due to high muscle tone, her hands and feet are not subject to the will, she has difficulty swallowing, and he can not speak. In this Tuesday was Mary Tartu University Children's Hospital physiotherapist Reeli Rutensi at Võimlemistund. "Sometimes I grumble about it here all the time, regardless of what we're doing," says Reeli Rutens mouthed laughter, as if he were in front of the most common child. "Sometimes it is just to understand how it will improve the mood at my place." Reeli Rutens Mary trains its third year and is able to communicate with him just looking at him and observing his body language. Võimlemistunnid Mary is very important. As Mary, the muscles are too tight, you will need to avoid the deformation of joints väljanihestumist, try to relax them. Also attending Mary gymnastics helps to breathe better. Mary spends her days in only the supine or sitting position, there will be problems with it ejecting phlegm, and proper ventilation of the lungs. Abiküsimine jenneke hard, "I heard it was a children's fund, but I never thought of that, that this fund could also help us to Mary," says the mother. Children's Fund to ask for help, it got half a chance last fall, when she first lastekaitsespetsialistilt investigate whether raising a child with cerebral palsy could be the contribution from the food. Abiküsimine is not easy because of the way you still admit that you can not handle it. In fact, Mary's mother and grandmother both did admirable work of raising a child all these twelve years. And they have been doing well. The child spent the first five years, so that no one family was all the time in office of Mary feeding, straw, and enough track-by-track. When Mary began to feed the probe through the nose, boiled and pureed foods for the mother of all yourself. "We kept a jar of dead food consumption," says the mother. "I made a puree yourself, everything that grows on land - potatoes, turnips box, collard greens, fruits and berries." But Mary, your body does not become such a feeding, however, all the necessary ingredients served. And ninasond began to irritate her stomach, maoverejooksud arose, and came to think about what happens next. November has gone to Mary gastrostomy fitted. jenneke This means a small bore probe in the stomach in the abdomen. After the South after training in gymnastics is Mary mealtime. Mother takes a bag of cocoa bottle jenneke of milk-colored liquid and warm water heats the bottle. Then it pulls the power mix into a large syringe combines the sondiotsikuga süstlaotsiku belly and compresses the mixture jenneke slowly to Mary's stomach. Mary needs a special day for five probes diet food, to a total of 1,000 milliliters. One meal is about three syringe full. Maarika Bricklayer says that Mary's health has improved jenneke so much, and recognizes jenneke that it regrets a bit that they gastrostomy and power not previously decided in favor of the mixture. "We thought that in this way we get where we are - in the end we let the child be mounted him, and all sorts of things can be a robot," says his mother. But the taste? Maarika Bricklayer tells Mary that she still teaches tastes. Party girl with an idea for both days can kohupiimatordist marjakissellist as a mother tongue of the child gently lubricates. Opinion Männik Agnes, the Children's Fund Chief Executive Children's Fund is currently supporting such a deep and three children were born with severe disabilities, who have installed gastrostomy, and who need to be fed special food probe. Doctors have said that such children can be estimated to be in about a dozen. In addition to the mental stress and burden associated with maintaining these families have a very high expenditure on medicines, with special nutritional care and acquisition, and they all need support. In such a situation, ask for help is not shameful. If a parent of a disabled child himself lacking courage, Mei